Washington University/BJC Healthcare joins the NORD Rare Disease Centers of Excellence Network, committed to improving access and care for rare disease patients.

We are proud to have a designation as a NORD Rare Disease Center of Excellence®, joining a highly select group of 31 medical centers, nationwide, as part of an innovative network seeking to expand access and advance care and research for rare disease patients in the United States. The program is being led by the National Organization for Rare Disorders NORD®, with a goal to foster knowledge sharing between experts across the country, connect patients to appropriate specialists regardless of disease or geography, and to improve the pace of progress in rare disease diagnosis, treatment, and research.

Our center provides clinical diagnosis and care for adults, children, and families with rare diseases (defined as <200,000 individuals in the United States). Washington University/BJC Healthcare is recognized as a leader in many areas of rare disease.

Specialty resource list

Provided below is a collection of Washington University/Barnes Jewish Healthcare (BJH and SLCH) resources by condition. Please use the search field to filter results. If you are unable to find what you are looking for, feel free to reach out to us to be directed appropriately.


For questions or further assistance, please contact us.

Michelle Oliva, RN, BSN

Michelle Oliva, RN, BSN

Nurse Navigator

NORD, the NORD logo and tagline are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity organization

Are you looking for a clinical trial?

StudySearch provides an easy way for the general public to search for and find basic descriptive information about research studies and clinical trials at Washington University School of Medicine in St. Louis.